HB 576-FN - AS INTRODUCED
2025 SESSION
25-0207
05/11
HOUSE BILL 576-FN
AN ACT relative to tracking the number of ALS diagnoses in the state.
SPONSORS: Rep. Rung, Hills. 12; Rep. Crawford, Carr. 3; Rep. Ebel, Merr. 7; Rep. J. MacDonald, Carr. 6; Sen. Prentiss, Dist 5; Sen. Watters, Dist 4
COMMITTEE: Health, Human Services and Elderly Affairs
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ANALYSIS
This bill adds ALS to the critical health problems reporting act.
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Explanation: Matter added to current law appears in bold italics.
Matter removed from current law appears [in brackets and struckthrough.]
Matter which is either (a) all new or (b) repealed and reenacted appears in regular type.
25-0207
05/11
STATE OF NEW HAMPSHIRE
In the Year of Our Lord Two Thousand Twenty Five
AN ACT relative to tracking the number of ALS diagnoses in the state.
Be it Enacted by the Senate and House of Representatives in General Court convened:
1 New Subparagraph; Critical Health Problems Reporting Act; Amyotrophic Lateral Sclerosis (ALS) Added. Amend RSA 141-A:2, I by inserting after subparagraph (c) the following new subparagraph:
(d) Amyotrophic lateral sclerosis (ALS).
2 Effective Date. This act shall take effect 60 days after its passage.
25-0207
1/3/25
HB 576-FN- FISCAL NOTE
AS INTRODUCED
AN ACT relative to tracking the number of ALS diagnoses in the state.
FISCAL IMPACT: This bill does not provide funding, nor does it authorize new positions.
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Estimated State Impact | ||||||
| FY 2025 | FY 2026 | FY 2027 | FY 2028 | ||
Revenue | $0 | $0 | $0 | $0 | ||
Revenue Fund(s) | None | |||||
Expenditures* | $0 | $861,000 | $146,000 | $152,000 | ||
Funding Source(s) | General Fund | |||||
Appropriations* | $0 | $0 | $0 | $0 | ||
Funding Source(s) | None | |||||
*Expenditure = Cost of bill *Appropriation = Authorized funding to cover cost of bill | ||||||
METHODOLOGY:
This bill adds amyotrophic lateral sclerosis (ALS) to the list of critical health problems identified in RSA 141-A:2. As a result, facilities will be required to report the existence of ALS within 10 days after the diagnosis or confirmation is made. The Department of Health and Human Services expects ALS diagnoses to be significantly greater in number than those for the other critical health problems listed in statute; accordingly, the Department states that it will need to develop a secure and HIPAA-compliant surveillance system to accept, validate, and manage reports with social security numbers, protected health information, and personally identifiable information. The Department projects a one-time cost of $741,335 in FY26, as follows:
- One (1) business analyst: $107,516 ($103.38 per hour, 8 hours per day, 5 days per week for 26 weeks)
- Three (3) system developers: $402,980 ($129.16 per hour, 8 hours per day, 5 days per week for 26 weeks for 3 developers)
- One (1) application architect: $135,315 ($130.11 per hour, 8 hours per day, 5 days per week for 26 weeks)
- One (1) quality assurance analyst: $95,524 ($91.85 per hour, 8 hours per day, 5 days per week for 26 weeks)
In addition, the Department anticipates needing an ongoing Information Technology Manager IV at $120,000 in FY26, $146,000 in FY27, and $152,000 in FY28.
AGENCIES CONTACTED:
Department of Health and Human Services